The Effect of Parental Support on the Quality of Life of Children with Thalassemia

Authors

  • Wuri Utami PhD student in Nursing, Faculty of Medicine and Health Sciences, Universiti Malaysia Sabah, Kinabalu, Malaysia. , Department of Pediatric Nursing, Faculty of Health Sciences, University of Muhammadiyah Gombong, Kebumen, Indonesia.
  • Mohd Nazri Department of Community and Family Medicine, Faculty of Medicine and Health Sciences, Universiti Malaysia Sabah, Kinabalu.
  • Khalid Mokti Department of Community and Family Medicine, Faculty of Medicine and Health Sciences, Universiti Malaysia Sabah, Kinabalu.

DOI:

https://doi.org/10.70135/seejph.vi.672

Keywords:

Quality of life Family support.

Abstract

Introduction: Thalassaemia is a blood disorder that is passed down from parents to their children. Patients should receive blood transfusions regularly. Children with thalassaemia will undergo treatment for a long time. These extreme impacts cause various physical, emotional, social, and environmental disorders that can reduce the quality of life of people with persistent thalassaemia major. Objectives: This study aims to determine the effect of family support on the quality of life in children with thalassaemia major. Methods: This research is a type of quantitative correlation with the cross-sectional approach. The sample of all thalassemia patients in April-August 2022 until 2024 Agustus, was 120 pediatric patients selected using the total sampling technique. Bivariate analysis using chi square. Results:  The age characteristics of children with thalassaemia were 83 (69.2%), the majority of females were 65 (54.2%). Family support was mostly positive for 63 (52.5%) and the quality of life of children with thalassaemia was mostly for 64 respondents (65.8%) in the normal category. There is a relationship of family support for the quality of life of children with thalassaemia at the Dr. Soedirman Regional General Hospital, Kebumen. Conclusions: Support family and friends, as well as providing a adequate for parents is very important in improving the quality of life of children Thalassaemia.

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Published

2024-08-29

How to Cite

Utami, W., Nazri, M., & Mokti, K. (2024). The Effect of Parental Support on the Quality of Life of Children with Thalassemia. South Eastern European Journal of Public Health, 49–55. https://doi.org/10.70135/seejph.vi.672

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